Wednesday, May 18, 2011

1 Week Old

Hello everyone.  This is Mark.  B.J. and I thought we would try something new this week and let me write our post.  This is my first blog post, EVER, so everyone will have to bear with me.

Our babies are one week old today!  We are so happy and thanking God.  About this time last week, B.J. and I weren't sure if we would make it to this small milestone with both our little ones.  But by the grace, mercy, and miraculousness of our Lord and Savior, Henry and Harper are still both with us, and they are putting up quite a fight.  God has shown us so much through these little ones already.  And we have learned so much about ourselves.  We've all heard it before, and many of my friends also stated this fact to me in the past, but it's amazing how much you can love someone the absolute moment that you meet them for the first time.  That's how it was for B.J. and me when we first met Henry and Harper.  They were, and are, the most beautiful things we had ever seen.  And we continue to pray for God's healing and protection over our little ones.  So far, He has come through.  

Henry is still on the oscillating machine that B.J. spoke of last week.  Right after he was born, he had to be put on this machine to keep him alive.  Not only was it serious enough that he was on this machine, but the settings were maxed out and he was on 100% oxygen.  On top of that he was on two different blood pressure meds, as well as being sedated to allow him to rest.  I'm happy to report, that as of this afternoon, he was no longer on any blood pressure meds, no longer being sedated, and the settings on the oscillator had been minimized and he was down to about 42% oxygen.  This does not, by any means, indicate that our little boy is still not very sick and no longer critical.  But it does mean he should be off that machine within in the next couple days, and placed on a conventional ventilator.  If he is able to remain stable on the conventional ventilator and continue to breath efficiently, he will be transferred to LeBonheur where he will remain until he is able to grow big enough and strong enough for surgery.  It also means that hopefully, within the next few days, B.J. and I will finally get to hold our little man in our arms.  We cannot wait!  Although his prognosis is still life threatening, we know that God is the great physician and we praise and thank him for the very small improvements Henry has made daily over the last week.  As one of his doctors said Monday during rounds, "with Henry, slow and steady wins the race". 

Now, to our little spitfire, Harper.  She is doing amazing considering she had IUGR and only weighs 2 lbs, 3 oz.  She has already taken to a pacifier and several times while B.J. and I have held has tried to lift her head up.  But, late last week and through the weekend she did have some abdominal distention that was very concerning to the doctors.  One of them even mentioned the possibility of surgery on her bowels.  As of yesterday the distention had resolved and she was able to start feeding late Tuesday evening.  All of last night and today, Harper has tolerated her feedings well.  And one of the surgeons stated this morning that we were out of the woods, for the time being, as far as surgery was concerned.  We are so grateful that God got her through that little bump in the road.  B.J. and I were so concerned and stressed that her little 2 pound body could not withstand surgery.  But again, God watched over our baby girl.  We are just hoping and praying that she will be able to continue to tolerate her feedings so we can put some meat on this skinny girl's bones.  

We continue to be humbled and blessed by the outpouring of love and prayer support shown to us.  It has definitely sustained B.J. and I through this long journey and we know that it has helped our babies get stronger.  We continually tell them how loved and prayed for they are.  We also give thanks, not only to God for the improvement of Henry and Harper, but also the doctors, and more importantly, the nurses that have cared for them.  The ladies that have treated our two little ones have been absolutely phenomenal and we are so grateful for them.  Please pray for B.J. and I as we continue on this journey and the 'roller coaster' that is having your children hospitalized.  Please pray for me as I try to make the transition back to the working world.  I feel very guilty leaving my sick babies and wife here in Memphis, but I know that God will sustain them daily until I return.  I am going to try to commute back-and-forth, so please pray that I will remain safe on the roads.  Please pray for B.J. as she continues to heal from the surgery.  She wants to be in the NICU as much as possible, but she is also still needing to rest and take time to heal.  Please remember Shirley as well, since she will be spending most of her time up here with B.J. while I am at work (much like she did during B.J.'s hospital stay).  Most importantly, continue to pray for Henry and Harper.  For Henry's minimal lung tissue to continue to strengthen so that he can safely be transported to LeBonheur.  For Harper to continue to tolerate her feedings and start to pack on the pounds.  And for both of them to stay infection free.  We thank you all for your fervent prayer.

God is good... all the time!

Mark, B.J., Henry and Harper

video
**above is a video of Harper sent to us by one of the nurses.  This happened in the middle of the night.  Apparently, she was NOT too happy and decided to turn herself sideways in her incubator and flail aimlessly at the air, as if she wanted to smack someone.  Like I said, spitfire!  This puts a smile on our face and a tear in our eye every time we watch it.  Praise God for that screaming baby!

17 comments:

Blakley said...

Wow! I am so overwhelmed at God's grace & strenght with those babies! I am so excited to hear their progress! See y'all this weekend.

Kyle and Matt Still said...

Loving the update by Mark! And loving that there is so much for which to praise God! That video is too cute...she's definitely got a set of lungs on her!!!

Anna said...

YAY! YAY! YAY! Thank you for sharing your story. This tough time will be beautiful one day when you look at it from the other side as a remembrance of God's love and faithfulness. Mark, no one would have ever thought it was your first blog post. You will have your own page in no time. Continuing to pray for you all.

Love,
Anna

Susanne said...

We are so thankful for the progress that Henry and Harper have made. We just thank God for sustaining you all. God has already blessed us all through your strength and faith.

katie ray said...

So happy to hear about Henry and Harpers progress! Will continue praying for each of you!

Hillary Jordan said...

Happy 1 week birthday, Henry and Harper... you're loved more than you'll ever know. 'Wishing' & praying for more healthy weeks ahead!

Anna said...

I am praying for ALL of you!! B.J., I am so happy for you and Mark. I know you already love these two more than you could have ever imagined. I know God has a special plan for these two little ones. I look forward to hearing more as the days, weeks, months, and YEARS go by!

Love to you both! Anna Katherine

Tammy Pace said...

How wonderful to celebrate one week of victories for your precious babies! They have overcome so much in just seven short days and I know that there are many more victories ahead. With God all things are possible and I know that y'all are trusting in God every step of the way. The pictures are precious and I love, love, love the video of Harper the great! She's a genuine ring-tailed tooter and full of spunk! Much love and many prayers to your sweet family :o)

Anonymous said...

Praying for you all, every day! - Lyndsey Wade

elise said...

Henry and Harper, are definitely some little miracles!! They are both a true testament to how powerful our Lord and Saviour is!! I am praying that each day they get stronger and stronger!! Your faith is so reasurring to everyone. Congrats on such a Wonderful and Amazing milestone!!

Elise J Choate

Anonymous said...

This is such a wonderful story of God's work through prayer. I don't know you B.J. and Mark but have prayed as have so many for you and those two precious babies. I will continue to pray that God will watch over them as well as you two and that they will both grow stronger everyday. God Bless

Margaret Presley

Sara Beth Stockton said...

You are all loved by many. Praying for each of you daily! Sara Beth

Crafty Critter said...

Everyday of life is a miracle. Praying for your babies, your wife and for you as you return to work. God is faithful and will give you strength when you feel like you can not keep going. I know this from experience. (My husband was in the ICU in June of 2009, on a vent, on 2 pressors, from sepsis. We have 3 children and the prognosis was not good. My husband is completely healed, no dialysis, only some minor nerve damage from the Pic-line.) Praise God for His goodness and love!!

Dennis Smith said...

Amazing babies, amazing parents, and an amazing God of grace and love!

The Ueltscheys said...

We continue to pray for you all! We love you and are so encouraged by your faith! Love, Whitney

ToKnowHim said...

I am so happy for your babies' progress, and I'm praying for you. Our little guy was born at 30 weeks, with lots of problems, and he will turn 5 in two weeks! Your video reminded me of how my little one used to pull out his feeding tube, and they finally had to restrain his hands. Well, he figured out how to latch his toes around it, and out it came again! These little ones are so strong and such fighters. I think God gives preemies a special strength so they can fight. And, I can say, that my now almost 5 year old still possesses that amazing strength that got him through the storm. I can honestly say that I have a good idea of what you're feeling, and I am standing in prayer for you and your babies. (Psalm 91)

justkays said...

Mark & BJ:

It was an honor to help take care of Harper and Henry while they were at the MED. We will keep them in our hearts and prayers that they are healed, grow, and are home soon.

Kay Conlee, RN